Tuesday, August 31, 2010
365::239
Monday, August 30, 2010
365::238 (from five years ago)

WELCOME TO HOLLAND
by
Emily Perl Kingsley.
c1987 by Emily Perl Kingsley. All rights reserved
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.Saturday, August 28, 2010
365::237 (the wedding)

Friday, August 27, 2010
365::236
Thursday, August 26, 2010
365::235
Wednesday, August 25, 2010
Tuesday, August 24, 2010
365::233
Monday, August 23, 2010
365::232
Sunday, August 22, 2010
365:232
Saturday, August 21, 2010
365::231
- The 6 am Kayak rides, coffee in hand
- Spending hours around the campfire....the talks, the stories
- Trevor's optimistic attitude, "if it rains....I'll just put my hood up", "It could be worse, we could be in a thunderstorm!"
- Lobster and steak for dinner
- Taking Lucy on her morning "swim"
- Trevor learning how to Kayak around the whole lake by himself and loving it
- quiet time.....writing in journals, listening to music and stories, unplugging
- the breakfasts
- Lucas showing us "his moves"
- Trevor: "Mountains make great backgrounds"
Friday, August 20, 2010
365::230
Thursday, August 19, 2010
365::229
AS we quickly approach the last weeks of summer, we end up feeling like we haven't done this enough. Somehow, work and chores got in the way of us fully enjoying the best summer weather ever (those things happen...) So tonight, we ended up down here for two hours, not caring what time the dinner bell rang, and the children going to bed un-bathed so as to add just a little more sand between their sheets. THIS never gets old (even in February)........After our TAKE OUT dinner, we sat around the living room, glass of wine in hand and did a puzzle (Bre is AMAZING at puzzles). We talked about our dreams for our upcoming vacation, what we wanted to be for Halloween, and what we were going to be when we grew up. As far as the vacation goes, we're going Kayaking every morning, making egg breakfast sandwiches (Just like at Boy scout Camp),hiking all day (and trying out Geocaching) and campfires and watching the stars come out every night. Here's hoping for good weather. As far as Halloween goes, Trevor will be Luke Skywalker and Lucas maybe R2D2 or Yoda. And as far as growing up, Lucas looked at me proudly and said, " UMMM, I want to be a Butterfly" ....Here's to being a butterfly :)
Wednesday, August 18, 2010
Tuesday, August 17, 2010
365::227
TWO year old, and all their abilities to tell you about their day, to answer questions, to dress themselves, to use the bathroom, to communicate and make friends. Then, picture putting that two year old (who is generally nervous about being around loud noises, and lots of strangers and freaks out at the feeling of being out of control) on a bus (with a seatbelt) getting off and getting into their classroom, taking care of their own backpack, clothes and bathroom issues, and having them make their way through a full 6 hrs and 15 minutes of school with a classroom of kids three times older than them, 6-7 different teachers, therapists and helpers telling them where to go, what to do, and how to interact, when all they want to do is play with the dolls in the corner. Then this TWO year old must get back on the bus and come home, only to be able to tell you nothing about what just happened to them for the last 6.5 hrs (including busride).......nervous yet???
Monday, August 16, 2010
365::226
Sunday, August 15, 2010
365::225
Saturday, August 14, 2010
365::224
Friday, August 13, 2010
365::223
Thursday, August 12, 2010
365:222
Wednesday, August 11, 2010
365::221
Tuesday, August 10, 2010
365::220
Monday, August 09, 2010
Sunday, August 08, 2010
365::218
Last night.....Saturday, August 07, 2010
365::217
Today.......Friday, August 06, 2010
Thursday, August 05, 2010
365::215
Wednesday, August 04, 2010
365::214
Tuesday, August 03, 2010
365::213





