Wednesday, February 11, 2009
determination.
I seem to go through these cycles with Breanna and dealing with her diagnosis (probably will be a life-long process I imagine). Something happens and I look at her and the enormity of it just overwhelms me. I think it started last week at her IEP meeting. Helen, said it upset her a little to hear all the results of Breanna's testing (ie a 4 year old who is still at a 2 year level for a lot of things.) She said it is hard for her b/c in the back of her mind she thinks that if they work REALLY hard, Breanna will get up to level (Which in reality, just won't happen). The funny thing is that Josh and I are so used to it, that it doesn't even phase or or make us sad in the least (most of the time). It just is what it is. My daily struggle is wondering if Breanna is the best she can be, or if there is something more that we can do to help her. GOD, it is stressful. Right now, I just have this hardened determination to make her speech better. I'm reading all I can get my hands on and driving myself crazy. Ruth says that she thinks Breanna is the best she can be. We'll see.......
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4 comments:
The most important thing is her caring, loving family which she has in spades... the rest will work itself out and, as you said, be "what it is". Doesn't mean that we can't always stive for the best, though... just enjoy the trip.
Breanna is loved and that is the most important thing for her right now. You will be surprised how she
will cope. I know it is hard not
to worry now but worrying never did
much good. You and Josh have done
so much. Treat her just like any
little girl and you will see how
happy she will be. I pray for all
of you every night and prayers do
work.
Love you
Grandma
I have been following your blog for a little over a year now. I don't even remember how I originally came across it (probably linked from someone else's blog somewhere!). I have truly enjoyed all of your beautiful photos, especially those of your family!
This post really hit home for me because I know exactly where you are coming from. I too have a child with Down syndrome. He is going to be 12 in April. I can relate to the stuggles of stressing about if you are always "doing everything you can."
For me, it gets especially hard around his birthday. While I rejoice in the new nilestones that have been accomplished in the past year, it is also bittersweet to be reminded of those things (skills) that he still has yet to gain.
When I am struggling, I have to try and remind myslef that we truly can only take it one day at a time. I also ask myself, "is he HAPPY"? The answer is always a resounding "yes". In the end, that is most important. He is happy, and has a family that supports and adores him! The same is true for Brianna!
From everything I have seen/read on this blog in the last year, you are a great mom and Brianna is a LUCKY girl! Does this mean you never throw a pitty party for yourself? No. Every once in a while, you just need to have a good cry, and then call up a girlfriend and meet up for a Chai Tea! :)
I'd offer for that girlfriend to be me, but Teaxs and Maine are not exactly close! :)
Christina
Ugh! I have to apologize...I now realize that I was spelling Breanna's name incorrectly! Sorry!
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